Tag Archives: Iodine

“We have your Thyrogen prescription.”

31 Mar

I just got off the phone with Walgreens Specialty Pharmacy in Ann Arbor. My Thyrogen is in. That means I am finally going to have my whole-body scan to see if there are any remaining thyroid cancer cells in my body. My bloodwork hasn’ t shown any signs of tumor growth, but the scan will look at the cellular level. I nearly had a meltdown on the phone…it was so, so weird. They basically just called and asked me for my birthdate before they would even reveal why they were calling, and then I had to pay my $250 co-pay over the phone before they would ship it to UofM. Maybe it’s the anxiety, but that REALLY annoyed me. I told the pharmacist, “This is an insane way to deal with cancer patients that have been waiting 8 months for medication. I want to hang up on you, but I am afraid you’ll give my Thyrogen to someone else.”

Well, you survivors out there know what this means…low-iodine diet. Here are just a few items I will have to part with for two whole weeks:

  • Milk
  • Cheese
  • Yogurt
  • Chocolate
  • Bread
  • Salt
  • Pre-packaged or restaurant food of any kind

I seriously feel like crying. I probably won’t even lose weight. Speaking of, there has been ZERO change from upping my Synthroid to 125 mcg, so I made an appointment with a holistic doctor. She’s going to try to compound T3/T4 thyroid medication for me, but I don’t have my blood tests back yet to determine the exact ratio. I was supplementing with iodine and selenium (it wasn’t effective), and she told me to stop. That’s a good thing, since now I have to deplete all of the iodine in my body.

Okay, let’s try to be positive. Ideally, I will go on this stupid diet for two weeks, get two injections, and then get the scan over with. (Hopefully there is no iodine in Xanax, because I am not going in that giant tube without it!)  There will be no microscopic cancer in my body. Then I will start on my perfectly compounded (and probably very expensive) thyroid medication, and by summer I will be completely back to normal.

Right?

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Still Bargaining…

21 Feb

Finally! Something to celebrate!

I just got a call from U of M, so I thought I would do a lunch hour post to share some news.

First, my ultrasound showed no abnormalities and my thyroglobulin (cancer tumor marker in the bloodstream) level is still undetectable.

The rest of my numbers are as follows:

  • B12: 490 (normal, and way better than before)
  • Vitamin D: 31 (normal, but could be higher)
  • TSH: 1.55 (I think that’s high – Dr. E likes it)
  • T4: 0.97 (I think that’s low – Dr. E likes it)
  • T3: 2.4 (that’s just about perfect, and that is while taking Cytomel)

So what does all this mean? It means I FINALLY get to go back on 125 mcg of Synthroid. Dr. E wants me to drop the Cytomel, but I begged to stay on it. We’ll see what she says.

OTHER NEWS:

  • I continue to live flour-free, and I think I am happy with the choice. I feel healthier overall, so it’s worth it. I never thought I could win the battle over bread, but I did! I don’t even crave it anymore.
  • I added back my iodine supplement (Iodoral) and started taking Selenium. It’s been 4 days, and I have lost 3 pounds. It’s hard to attribute the weight loss to any one thing, but whatever, I’ll take it. I am researching and closely monitoring my response to iodine, and will post separately about my findings.
  • I am feeling really good. I always forget to reflect on the improvements in my health. My energy level is almost normal, my hair totally stopped falling out and looks normal, my skin is not as dry, and I don’t feel as depressed as I did before. What’s changed? Cytomel? Flour elimination? Added estrogen? The fact that I have been exercising a little bit more? There’s no way to know, so I will just keep doing what I’m doing!

Cheers to being cancer-free, and to a higher dose of Synthroid!

***THIS JUST IN***

 I get to stay on 5 mcg of Cytomel with the new increased dose of 125 mcg Synthroid. It’s what I have been pulling for all along! I am seriously jumping for joy!